Raynaud phenomenon FAQs

What is the outlook for Raynaud phenomenon sufferers?

Generally, a person’s outlook for Raynaud's is dependent on the intensity of their condition and the type. Primary Raynaud phenomenon does not generally pose many additional health concerns and when mild is more of a nuisance than a debilitating condition. There is very little risk of long-term damage or disability.

Secondary Raynaud phenomenon is associated with higher risk factors of infection, ulcers of the skin affecting the hands and feet and in severe cases, gangrene. Other risk factors may be associated with underlying cause conditions. Prolonged or frequent vasospasm attacks that are severe can lead to some degree of long-term damage.

Ongoing treatment and lifestyle considerations are important so as to avoid tissue damage to the skin and blood vessels in the body. A person can cope fairly well with the condition, with or without the aid of medications. The less frequently vasospasm attacks occur, the better in the long run. The more precipitating factors can be avoided or limited, the easier it can be to prevent frequent attacks.

What kind of research is being done on Raynaud phenomenon?

Research studies are looking at possible links relating to causes of the condition. As yet, causes of the condition are not as understood as the trigger points of the condition.

Suspected influences being researched include:

• Genetics (inherited factors) and molecular mechanisms as they relate to symptoms and other associated blood-vessel changes.
• Nitric oxide used in a gel form is being looked at as a possible circulation treatment (local nitric oxide may help to dilate blood vessels).
• Techniques which may be better to help make a diagnosis, and monitor treatment responsiveness.

Researchers are also looking into the condition in relation to associated secondary disorder influences (connective tissue diseases and other rheumatic or autoimmune conditions).